Diaries
It can be helpful to note down what is happening when so we have created diaries you can use to track sleep, seizure episodes or what you are doing day to day. You can download them here.
Living with NEAD can feel confusing, frustrating or even a bit scary at times — and that’s completely understandable. NEAD (non‑epileptic attack disorder) is a real condition, and it’s something many young people experience. It’s not your fault, and you’re not alone. This part of the website is designed especially for you: a place where you can understand what NEAD is, why it happens, and what can help you feel more in control day‑to‑day.
You’ll find practical tools here that many young people tell us make a real difference. The sleep diary, wellbeing journal, and event diary can help you spot patterns, understand your triggers, and notice what helps you feel steadier. You don’t need to fill them in perfectly — they’re simply tools to help you understand yourself better, and to make conversations with family, school or clinicians easier if you want to share them. If you want a plan about how those around you should manage your episodes then download one of our School plans. One is just for NEAD and one is for those who have both Epilepsy and NEAD.
There’s also advice about wellbeing, stress, grounding, and looking after your body and mind. These aren’t “quick fixes”, but small, steady habits that support your brain and nervous system over time. You can dip in and out, try things at your own pace, and choose what feels right for you. And if you like hearing from other young people or want regular ideas and encouragement, you can check out the weekly blog posts — short, honest pieces about coping, confidence, school, friendships, and everything in between.
A Guide For You: Understanding NEAD in School or College
How to feel more in control when your body has big reactions
1. First things first: NEAD is real and it’s not your fault
NEAD (Non‑Epileptic Attack Disorder) is something that happens when your brain gets overwhelmed.
Your brain isn’t broken. You’re not doing anything wrong.
Your body is reacting to stress in a way that feels big and scary, but it’s not dangerous.
Lots of young people experience this. You’re not alone.
2. What’s actually happening in your brain?
When things get too much, your brain switches into survival mode.
The “thinking” part of your brain goes quiet
The “protecting” part takes over
You might not be able to talk, move normally, or explain what’s happening
This is why adults don’t ask you lots of questions during an episode, your brain literally can’t answer them yet.
3. What school or college adults will do to help you
School or college staff are there to help you feel:
Safe
They won’t tell you off or make a big deal in front of other people.
Seen
They’ll notice when you’re struggling and check in gently.
Soothed
They’ll use calm voices, low lights, and grounding skills to help your body settle.
Secure
They’ll follow the same plan every time so you know what to expect.
4. Skills that help your body calm down
(These are simple things you can do with a trusted adult or on your own)
Breathing skills
In for 4, out for 6
Box breathing (in 4, hold 4, out 4, hold 4)
Grounding skills
Name 5 things you can see
Feel your feet on the floor
Hold something and notice its texture
Listen for one sound in the room
Sensory skills
Cool water on your hands
Weighted cushion
Fidget tool
Wall push (push your hands into the wall)
Emotion skills
“I’m feeling ______ right now.”
Rate it 0–10
These skills help your brain switch out of survival mode.
5. What happens if you have an episode at school or college
Adults will:
Stay calm
Move people away quietly
Keep you safe
Let you sit or lie down
Use grounding or breathing skills with you
Wait until your brain comes back online
They won’t:
Ask lots of questions
Tell you off
Crowd you
Panic
Treat it like you’re doing something wrong
You deserve calm, kind support — and that’s what they’ll give.
6. When school or college calls an ambulance (and when they don’t)
This part is important and might help you feel safer.
If you already have a diagnosis of NEAD
and your episode looks like your usual episodes:
School or college does NOT need to call an ambulance.
You’re safe, and they’ll follow your plan.
School or college WILL call 999 if:
Something looks different from usual
They’re not sure if it’s NEAD or something else
It lasts longer than 5 minutes
You’re injured
You’re struggling to breathe
It’s your first ever episode
This is just to keep you safe, not because you’ve done anything wrong.
7. Early signs you might notice in yourself
Everyone’s different, but some common signs are:
Feeling “far away”
Tight chest
Shaky or wobbly
Fuzzy head
Feeling overwhelmed
Numbness
Breathing changes
If you spot these early, you can use your skills sooner, which often helps.
8. What helps you stay well in school or college
Predictable routines
Quiet exits when things feel too much
A safe space
Regular movement breaks
Adults who understand NEAD
Using your grounding or sensory skills
Having a simple plan that everyone follows
You don’t have to manage this alone.
9. What you can say to adults if you need help
You don’t need long explanations.
Short phrases work really well:
“I need a break.”
“I’m getting early signs.”
“Can we do grounding?”
“I need quiet.”
Or you can use a card, signal, or gesture if talking is hard.
10. The most important thing to remember
NEAD doesn’t define you.
It’s something your brain does when it’s overwhelmed and you can learn skills to help it settle.
With the right support, most young people get better, feel more in control, and have fewer episodes over time.
You’re strong. You’re not alone. And you can absolutely do this.
A Guide for You: Understanding Functional Neurological Disorders
A guide for young people and the adults who support them
Functional Neurological Disorders (FND) are real, common, and treatable conditions that affect how the brain and body communicate. They sit at the intersection of neurology and psychology because the brain’s normal communication pathways become disrupted in how they function.
Two types of FND that many young people experience are:
NEAD (Non‑Epileptic Attack Disorder)
Functional tics
Both can look and feel like neurological conditions such as epilepsy or Tourette syndrome, but they work differently and need a different approach to support and recovery.
What does “functional” actually mean?
Think of the brain as a brilliant, busy control centre. In neurological conditions, there is a structural or electrical problem, something physically different in the brain or nerves.
In functional conditions, the structure is normal, but the functioning becomes disrupted. The brain is still healthy, but the communication systems that control movement, sensation, or awareness start sending signals in a less reliable way.
This is why symptoms are real, involuntary, and often very frightening: but also why recovery is absolutely possible.
NEAD (Non‑Epileptic Attack Disorder)
What it looks like
NEAD episodes can look very similar to epileptic seizures: shaking, loss of awareness, collapsing, or becoming unresponsive.
How it differs from epilepsy
In epilepsy, seizures are caused by abnormal electrical activity in the brain.
In NEAD, the brain’s electrical activity is normal during an episode. The problem lies in how the brain processes stress, sensory information, and automatic responses.
Why NEAD happens
NEAD often develops when the brain becomes overwhelmed—sometimes by stress, sometimes by physical illness or pain, sometimes by a build‑up of pressures that the young person may not even recognise. The brain shifts into a protective “shutdown” or “overload” mode.
This is not deliberate. It is not attention‑seeking. It is not the young person’s fault.
Functional Tics
What they look like
Functional tics can include sudden movements, sounds, or words that feel hard to control. They may appear quickly, change rapidly, or be influenced by social or emotional situations.
How they differ from Tourette syndrome
Tourette syndrome is a neurodevelopmental condition with a typical pattern of onset in early childhood.
Functional tics often start later, may be more dramatic or complex, and can be linked to stress, anxiety, or copying behaviours seen in peers or online.
Why functional tics happen
The brain becomes highly tuned to certain movements or sounds, and they become “learned” automatic responses. The more attention the brain gives them, the stronger they can become—much like a habit loop.
Again, this is not chosen behaviour. It is a brain‑body communication issue.
Why do these conditions occur?
There is rarely one single cause. Instead, several factors can combine:
Stress or emotional overload
Physical illness, pain, or fatigue
Difficult life events
High expectations or pressure
Neurodivergence (e.g., ADHD, autism)
Social influences, including online content
A sensitive or highly responsive nervous system
Young people are especially vulnerable because their brains are still developing, and they often carry invisible pressures from school, friendships, family life, and identity.
The most important message
These conditions are real. They are common. And with the right support, young people can get better.
Diagnosis is the first step. Understanding what is happening reduces fear and gives back a sense of control.
What helps?
A wellbeing‑centred, strengths‑based approach
There is no single “quick fix,” but recovery is absolutely possible. The most effective approach focuses on:
1. Calming the nervous system
Regular routines
Sleep support
Gentle physical activity
Breathing and grounding techniques
Reducing sensory overload
2. Understanding triggers
Noticing patterns—stress, tiredness, conflict, busy environments—helps young people predict and manage symptoms.
3. Building emotional resilience
Therapeutic support can help young people understand their feelings, develop coping strategies, and feel more in control.
4. Re‑training the brain
For NEAD:
Staying calm during episodes
Reducing avoidance
Gradually returning to normal activities
For functional tics:
Redirecting movements
Reducing attention to tics
Strengthening alternative habits
5. Supportive adults
Carers, teachers, and family members play a huge role by:
Staying calm
Avoiding panic responses
Encouraging normal routines
Keeping expectations steady and realistic
Reinforcing the message that recovery is possible
A hopeful outlook
Young people with FND, NEAD, or functional tics can and do get better. Many recover fully. Others learn to manage symptoms so they no longer interfere with daily life.
The key ingredients are:
The right diagnosis
Understanding what’s happening
Supportive adults
A focus on wellbeing
Confidence that the young person can take ownership of their recovery
With these in place, the brain can re‑learn healthy patterns—and young people can get back to living the lives they want.