Diaries

It can be helpful to note down what is happening when so we have created diaries you can use to track sleep, seizure episodes or what you are doing day to day. You can download them here.

Living with NEAD can feel confusing, frustrating or even a bit scary at times — and that’s completely understandable. NEAD (non‑epileptic attack disorder) is a real condition, and it’s something many young people experience. It’s not your fault, and you’re not alone. This part of the website is designed especially for you: a place where you can understand what NEAD is, why it happens, and what can help you feel more in control day‑to‑day.

You’ll find practical tools here that many young people tell us make a real difference. The sleep diary, wellbeing journal, and event diary can help you spot patterns, understand your triggers, and notice what helps you feel steadier. You don’t need to fill them in perfectly — they’re simply tools to help you understand yourself better, and to make conversations with family, school or clinicians easier if you want to share them. If you want a plan about how those around you should manage your episodes then download one of our School plans. One is just for NEAD and one is for those who have both Epilepsy and NEAD.

There’s also advice about wellbeing, stress, grounding, and looking after your body and mind. These aren’t “quick fixes”, but small, steady habits that support your brain and nervous system over time. You can dip in and out, try things at your own pace, and choose what feels right for you. And if you like hearing from other young people or want regular ideas and encouragement, you can check out the weekly blog posts — short, honest pieces about coping, confidence, school, friendships, and everything in between.

A Guide For You: Understanding NEAD in School or College

How to feel more in control when your body has big reactions

1. First things first: NEAD is real and it’s not your fault

NEAD (Non‑Epileptic Attack Disorder) is something that happens when your brain gets overwhelmed.
Your brain isn’t broken. You’re not doing anything wrong.
Your body is reacting to stress in a way that feels big and scary, but it’s not dangerous.

Lots of young people experience this. You’re not alone.

2. What’s actually happening in your brain?

When things get too much, your brain switches into survival mode.

  • The “thinking” part of your brain goes quiet

  • The “protecting” part takes over

  • You might not be able to talk, move normally, or explain what’s happening

This is why adults don’t ask you lots of questions during an episode, your brain literally can’t answer them yet.

3. What school or college adults will do to help you

School or college staff are there to help you feel:

Safe

They won’t tell you off or make a big deal in front of other people.

Seen

They’ll notice when you’re struggling and check in gently.

Soothed

They’ll use calm voices, low lights, and grounding skills to help your body settle.

Secure

They’ll follow the same plan every time so you know what to expect.

4. Skills that help your body calm down

(These are simple things you can do with a trusted adult or on your own)

Breathing skills

  • In for 4, out for 6

  • Box breathing (in 4, hold 4, out 4, hold 4)

Grounding skills

  • Name 5 things you can see

  • Feel your feet on the floor

  • Hold something and notice its texture

  • Listen for one sound in the room

Sensory skills

  • Cool water on your hands

  • Weighted cushion

  • Fidget tool

  • Wall push (push your hands into the wall)

Emotion skills

  • “I’m feeling ______ right now.”

  • Rate it 0–10

These skills help your brain switch out of survival mode.

5. What happens if you have an episode at school or college

Adults will:

  • Stay calm

  • Move people away quietly

  • Keep you safe

  • Let you sit or lie down

  • Use grounding or breathing skills with you

  • Wait until your brain comes back online

They won’t:

  • Ask lots of questions

  • Tell you off

  • Crowd you

  • Panic

  • Treat it like you’re doing something wrong

You deserve calm, kind support — and that’s what they’ll give.

6. When school or college calls an ambulance (and when they don’t)

This part is important and might help you feel safer.

If you already have a diagnosis of NEAD

and your episode looks like your usual episodes:

School or college does NOT need to call an ambulance.
You’re safe, and they’ll follow your plan.

School or college WILL call 999 if:

  • Something looks different from usual

  • They’re not sure if it’s NEAD or something else

  • It lasts longer than 5 minutes

  • You’re injured

  • You’re struggling to breathe

  • It’s your first ever episode

This is just to keep you safe, not because you’ve done anything wrong.

7. Early signs you might notice in yourself

Everyone’s different, but some common signs are:

  • Feeling “far away”

  • Tight chest

  • Shaky or wobbly

  • Fuzzy head

  • Feeling overwhelmed

  • Numbness

  • Breathing changes

If you spot these early, you can use your skills sooner, which often helps.

8. What helps you stay well in school or college

  • Predictable routines

  • Quiet exits when things feel too much

  • A safe space

  • Regular movement breaks

  • Adults who understand NEAD

  • Using your grounding or sensory skills

  • Having a simple plan that everyone follows

You don’t have to manage this alone.

9. What you can say to adults if you need help

You don’t need long explanations.
Short phrases work really well:

  • “I need a break.”

  • “I’m getting early signs.”

  • “Can we do grounding?”

  • “I need quiet.”

Or you can use a card, signal, or gesture if talking is hard.

10. The most important thing to remember

NEAD doesn’t define you.
It’s something your brain does when it’s overwhelmed and you can learn skills to help it settle.

With the right support, most young people get better, feel more in control, and have fewer episodes over time.

You’re strong. You’re not alone. And you can absolutely do this.

A Guide for You: Understanding Functional Neurological Disorders

A guide for young people and the adults who support them

Functional Neurological Disorders (FND) are real, common, and treatable conditions that affect how the brain and body communicate. They sit at the intersection of neurology and psychology because the brain’s normal communication pathways become disrupted in how they function.

Two types of FND that many young people experience are:

  • NEAD (Non‑Epileptic Attack Disorder)

  • Functional tics

Both can look and feel like neurological conditions such as epilepsy or Tourette syndrome, but they work differently and need a different approach to support and recovery.

What does “functional” actually mean?

Think of the brain as a brilliant, busy control centre. In neurological conditions, there is a structural or electrical problem, something physically different in the brain or nerves.

In functional conditions, the structure is normal, but the functioning becomes disrupted. The brain is still healthy, but the communication systems that control movement, sensation, or awareness start sending signals in a less reliable way.

This is why symptoms are real, involuntary, and often very frightening: but also why recovery is absolutely possible.

NEAD (Non‑Epileptic Attack Disorder)

What it looks like

NEAD episodes can look very similar to epileptic seizures: shaking, loss of awareness, collapsing, or becoming unresponsive.

How it differs from epilepsy

  • In epilepsy, seizures are caused by abnormal electrical activity in the brain.

  • In NEAD, the brain’s electrical activity is normal during an episode. The problem lies in how the brain processes stress, sensory information, and automatic responses.

Why NEAD happens

NEAD often develops when the brain becomes overwhelmed—sometimes by stress, sometimes by physical illness or pain, sometimes by a build‑up of pressures that the young person may not even recognise. The brain shifts into a protective “shutdown” or “overload” mode.

This is not deliberate. It is not attention‑seeking. It is not the young person’s fault.

Functional Tics

What they look like

Functional tics can include sudden movements, sounds, or words that feel hard to control. They may appear quickly, change rapidly, or be influenced by social or emotional situations.

How they differ from Tourette syndrome

  • Tourette syndrome is a neurodevelopmental condition with a typical pattern of onset in early childhood.

  • Functional tics often start later, may be more dramatic or complex, and can be linked to stress, anxiety, or copying behaviours seen in peers or online.

Why functional tics happen

The brain becomes highly tuned to certain movements or sounds, and they become “learned” automatic responses. The more attention the brain gives them, the stronger they can become—much like a habit loop.

Again, this is not chosen behaviour. It is a brain‑body communication issue.

Why do these conditions occur?

There is rarely one single cause. Instead, several factors can combine:

  • Stress or emotional overload

  • Physical illness, pain, or fatigue

  • Difficult life events

  • High expectations or pressure

  • Neurodivergence (e.g., ADHD, autism)

  • Social influences, including online content

  • A sensitive or highly responsive nervous system

Young people are especially vulnerable because their brains are still developing, and they often carry invisible pressures from school, friendships, family life, and identity.

The most important message

These conditions are real. They are common. And with the right support, young people can get better.

Diagnosis is the first step. Understanding what is happening reduces fear and gives back a sense of control.

What helps?

A wellbeing‑centred, strengths‑based approach

There is no single “quick fix,” but recovery is absolutely possible. The most effective approach focuses on:

1. Calming the nervous system

  • Regular routines

  • Sleep support

  • Gentle physical activity

  • Breathing and grounding techniques

  • Reducing sensory overload

2. Understanding triggers

Noticing patterns—stress, tiredness, conflict, busy environments—helps young people predict and manage symptoms.

3. Building emotional resilience

Therapeutic support can help young people understand their feelings, develop coping strategies, and feel more in control.

4. Re‑training the brain

For NEAD:

  • Staying calm during episodes

  • Reducing avoidance

  • Gradually returning to normal activities

For functional tics:

  • Redirecting movements

  • Reducing attention to tics

  • Strengthening alternative habits

5. Supportive adults

Carers, teachers, and family members play a huge role by:

  • Staying calm

  • Avoiding panic responses

  • Encouraging normal routines

  • Keeping expectations steady and realistic

  • Reinforcing the message that recovery is possible

A hopeful outlook

Young people with FND, NEAD, or functional tics can and do get better. Many recover fully. Others learn to manage symptoms so they no longer interfere with daily life.

The key ingredients are:

  • The right diagnosis

  • Understanding what’s happening

  • Supportive adults

  • A focus on wellbeing

  • Confidence that the young person can take ownership of their recovery

With these in place, the brain can re‑learn healthy patterns—and young people can get back to living the lives they want.